How We’re Making a Difference.

There are over 250,000 adults who were born with a heart condition (CHD) living in the UK. The Somerville Foundation (previously GUCH Patients Association) provides support for adults born with heart disease (ACHD). The charity exists to create a world where they receive excellent medical care, and lead happy, healthy lives.  

To do this, we aim to:

  • Provide all congenital heart patients with accurate, timely information and advice. Allowing them to grasp opportunities, take informed decisions and make positive lifestyle choices
  • Combat isolation and poverty for congenital heart patients and their families
  • Fight discrimination through campaigns, education and the promotion of congenital heart patients’ rights
  • Enable congenital heart patients to share and learn from experiences and support each other.

But we can’t do it alone. In order to ensure they enjoy access to every opportunity, are free from discrimination, and are fully supported throughout their lives, we need your help.

Do something remarkable. Help us make a difference.


Supporting patients since 1993

  • Started life as the Grown Up Congenital Heart Patients Association
  • Co-founded by Professor Jane Somerville and Judy Shedden MBE
  • Initial funding was obtained from the British Heart Foundation in 1993
  • Registered as a charity in 1994
  • Created to enable congenital heart patients to help and support each other
  • Renamed The Somerville Foundation, in honour of Professor Jane Somerville, in 2012

How we are changing lives.

Research that saves lives
A national support network
A wealth of help and advice
The UK’s first Congenital Heart Research Centre
Financial support
Campaigning for better services & support