We’re healing broken hearts.

There are over 250,000 adults who were born with a heart condition (CHD) living in the UK. The Somerville Foundation (previously GUCH Patients Association) exists to create a world where they receive excellent medical care, and lead happy, healthy lives.

To do this, we aim to:

  • Provide all congenital heart patients with accurate, timely information and advice. Allowing them to grasp opportunities, take informed decisions and make positive lifestyle choices
  • Combat isolation and poverty for congenital heart patients and their families
  • Fight discrimination through campaigns, education and the promotion of congenital heart patients’ rights
  • Enable congenital heart patients to share and learn from experiences and support each other.

But we can’t do it alone. To ensure adult congenital heart patients enjoy access to every opportunity, are free from discrimination, and are fully supported throughout their lives, we need your help.

Do something remarkable. Help us make a difference.


Supporting patients since 1993

  • Started life as the Grown Up Congenital Heart Patients Association
  • Co-founded by Professor Jane Somerville and Judy Shedden MBE
  • Initial funding was obtained from the British Heart Foundation in 1993
  • Registered as a charity in 1994
  • Created to enable congenital heart patients to help and support each other
  • Renamed The Somerville Foundation, in honour of Professor Jane Somerville, in 2012

How we are changing lives.

Research that saves lives
A national support network
A wealth of help and advice
The UK’s first Congenital Heart Research Centre
Financial support
Campaigning for better services & support

With your help, we’ve helped fund new and improved treatments for congenital heart disease. we opened the UK’s first dedicated Congenital Heart Research Centre. we’ve organised receptions at the House of Lords and House of Commons, a film première, concerts, parachute jumps, marathon runs, annual sponsored walks and masquerade balls. we ensure that adult CHD patients enjoy access to every opportunity, are free from discrimination, and are fully supported throughout their lives. we’ve staged annual conferences, regional patient information days and workshops throughout the UK. we’ve published a range of leaflets for CHD patients on a wide-range of topics. we’ve launched a Freephone patient helpline to provide practical advice, a listening ear, and emotional reassurance at times of stress. we’ve created online networks where congenital heart patients can connect with each other. we successfully applied for a Comic Relief grant to help develop mental health support services. we’ve contributed to adult congenital heart disease nurse training days and taken part in various study days and conferences for medical and health professionals. we’ve established a benevolent fund for members who are in financial hardship. we’ve organised residential weekends and outward bound holidays for teenagers and adults, providing congenital heart patients with the opportunity to meet and gain support from each other.

Just think what else we could do if you donate, fundraise or volunteer for us.


Keep your heart healthy

Access to help & advice to help people born with heart conditions live long, full and happy lives.

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Heart to Heart

Do something remarkable and help us make a difference.