Entries by Somerville Admin

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James’ Remarkable Run

On the 4th of October my girlfriend, Issy, underwent open-heart surgery at St Bart’s Hospital. This was to treat an atrial septal defect, or more commonly known as a hole in her heart. Issy had been unaware of this issue until a few years ago when she had a check up for something unrelated which […]

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Thank You Melissa

Melissa Mullan has decided to take on the challenge of The Royal Parks Half Marathon on Sunday 9th October 2016 to raise much needed funds for The Somerville Foundation, to help us to continue to support young people and adults born with a heart condition. “I hadn’t run in more than and year and told […]

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Help us raise awareness

The best way to raise awareness for The Somerville Foundation and CHD is through videos – and we need your help! We need you to make us a short video that can be published on our website and social media platforms. It doesn’t have to be long, and it doesn’t have to be edited, we’d […]

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Thank You

There were all sorts of fantastic awareness raising activities going on all over the U.K. this CHD Awareness Week, all aiming to raise awareness for The Somerville Foundation and the wonderful people we work to support. We’d like to say a massive Thank You to everyone who took part in raising funds and awareness for […]

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INGA Wellbeing

We are delighted to announce that we are currently working with INGA Wellbeing to ensure that adult congenital heart disease patients have the opportunity to wear comfortable clothes that look entirely normal during any long term stays in hospital, while not worrying about IV lines, monitors and MRIs or X-rays. INGA Wellbeing was founded by […]

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IBC Charity of the Year

We are delighted to have been chosen as one of Ipswich Borough Councils charities for 2019. Being a chosen charity allows us to attend IBC managed events and collect donations. We will be attending Ipswich Music Day, held inside Christchurch Park  on Sunday 1st July 2019. The day will be great fun and we are […]

Scottish Standards Review

Scottish Standards Review The Somerville Foundation appointed me as their (voluntary) Campaign Manager in Scotland after seeing me present evidence to The Scottish Public Petitions Committee at the Scottish Parliament in 2012. I had submitted a petition to the Scottish Government to ask for Healthcare Standards and improved care provision for adults born with a […]

GDPR Update

The Somerville Foundation Legitimate interests Statement The Somerville Foundation has been working hard to comply with the new General Data Protection Regulations to ensure that you have full access to our services and that all your data remains secure. Under the new data protection law (GDPR) starting on 25 May 2018 we have a number […]

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Annual Conference London 2018

We very much hope that you will be able to join us for our Annual Conference which this year will be held at the Royal Brompton Hospital in London. As always we will do our best to support your attendance. If you are currently unwell or have special needs we will be very happy to […]

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Contraception for Women with a Heart Condition

There are several types of contraception available that work in different ways, and some also provide protection against sexually transmitted infections (STIs). In this leaflet we will hopefully provide you with information so you know which are safe and effective for YOU! Download Contraception for Woman with a Heart Condition PDF

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A Guide to Adult Cardiac Care (Transition)

Growing up can be an exciting time, with many changes and opportunities; a first job, going to university, new friends and new relationships. It will also mean that at some point, when are you are between the ages of 16 and 18 years, you will transfer from the children’s hospital services where you have been […]

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What will survive of us is love

Yesterday, I went to the wedding of a very dear friend. He’s not a friend I see often, but somehow, despite neither of us not being very good at keeping in touch these days, we have remained friends. The wedding invitation was quite possibly the most surprising, and best, piece of post I’ve ever had. […]

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Vertical and horizontal

In Come Dance With Me, by Russell Hoban (again), one of the characters, a doctor, makes an interesting observation about the doctor-patient relationship, imparted to him by his predecessor at the hospital: ‘It’s a matter of the vertical vis-a-vis the horizontal’ […] ‘The doctor is vertical; the patient is horizontal, even when they’re walking around. The doctor wears […]

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The story of my heart

Is that a song title? It might be. Anyway, I still haven’t even started writing my GUCH story, and only 33 (? maths isn’t my strong point)days until the deadline.  Actually, that is quite a while, maybe that’s why I haven’t started yet – not enough pressure. I am a bit appalled, though, that I […]

Wisdom tooth

I had my third wisdom tooth out yesterday. The local anaesthetic injections were the worst bit. I didn’t cry as much as when I had the filling in June. I kept the tooth, although now I’m not sure what to do with it. Wisdom Teeth by Taryn on Flickr All credit to the dentist who […]

Great expectations? How experience of chronic ill health affects what we expect

This post is about: how experience of chronic illness affects how and what people with chronic ill health expect of themselves and their experiences (particularly medical interventions) what expectations ‘healthy’ people have of how people with chronic ill health will experience medical interventions. I tried to fit all that into the title but it was […]

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The Somerville Foundation partners with Zetasafe

ZetaSafe, global leader in quality, safety, compliance and data solutions is delighted to announce its’ new partnership with the UK’s only dedicated congenital heart charity, The Somerville Foundation. Managing Director of ZetaSafe, Andrew Dobbins announced the partnership, saying ‘We are delighted to support The Somerville Foundation through the sponsorship of their UK hospital roadshow events […]

Joint collaboration – Research

Introduction There are many research studies being undertaken within the GUCH unit at The Heart Hospital that will be ongoing at The Barts Heart Centre after our merger. We’d like to highlight some of our projects that may be interesting to the GUCH patients to participate in. Assessment of cognitive function in GUCH patients The […]

Our research policy

The Somerville Foundation Research Policy Overview The Somerville Foundation (TSF) welcomes the opportunity to work in partnership with researchers, when their research is likely to benefit patients, and the patient’s participation will be empowering, rewarding and pleasant. We have recently launched our Big Six Campaign so that in the future we will be able to […]

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UK’s first congenital heart research centre opens

UK’s first congenital heart research centre opens We are delighted to inform you that a new Congenital Research Centre, the UK’s first dedicated centre will officially open on Wednesday 4th May 2016 at 7.00pm. Join us on launch night and enjoy a private viewing of the Scarred FOR Life exhibition. University Campus Suffolk (UCS) and The […]

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Living with a pacemaker

In GUCH News (issue 72), patient and member Kulsoom Akbar shared her story with us. Kulsoom, now aged 25, had her first pacemaker fitted at just 17 months. Growing up with the device, Kulsoom has encountered many issues, but has also embraced the life that the pacemaker has allowed her to enjoy. Here, we explore […]

Transplantation

****This article was first published in GUCH News issue 73 Summer 2013.****   Mr James Barnard, Consultant in Cardiothoracic Transplantation, Wythenshawe Hospital, Manchester Dr Clive Lewis, Consultant Cardiologist and Transplant Physician Papworth Hospital, Cambridge Heart Transplantation for Congenital Heart Disease (CHD) Forty-six years ago, on December 3rd 1967, the world’s first human heart transplant was […]

The Open Heart Companion – Book review

The Open Heart Companion: Preparation and Guidance for Open-Heart Surgery Recovery Buy The Open Heart Companion: Preparation And Guidance for Open-heart Surgery Recovery  Author: Maggie Lichtenberg Date of review: 09/11/2008 This book was about: The book is all about preparing for open-heart surgery with lots of hints and tips about how to try and enhance […]