Help support the thousands of adults born with a heart condition living in the UK today.

Campaigning on issues that are important to you can make a real difference. That’s why we work together to help support and protect congenital heart patients.

With help from our heart heroes, we’ve helped fund new and improved treatments for congenital heart defects, we’ve opened the UK’s first dedicated Congenital Heart Research Centre, and we ensure that adult CHD patients are fully supported throughout their lives.

Together we have the power to do this. We can create a better world.

Whether you campaign on a particular initiative or issue, or give your time regularly, thank you very much for your support. We couldn’t do what we do without you.

Campaign with us.. Register your details to see how you can help

Current Campaigns

Ensuring the best standards of care

Our work helps the NHS to ensure proper implementation and ongoing standards of care and medical service provision.

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Big Six Research

Our Big Six campaign is raising money to fund research and find more effective ways to treat and support adult CHD patients.

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Campaigning in Scotland

We are working with service providers and relevant stakeholders to improve healthcare provision in Scotland.

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Wear your heart on your sleeve

Order a ‘wear your heart on your sleeve’ bracelet and raise awareness of CHD.

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Previous Campaigns

NHS England proposals for congenital heart defect services consultation

In 2017, NHS England launched a consultation to help ensure excellent care for patients with congenital heart defects. We made sure our members’ views were represented in this process.

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CHD Awareness Week

Taking place in February 2018, we helped campaigners across the country to spread the word and raise funds to help adult CHD patients live longer, healthier, happier lives.

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Get your business involved!

From raising money to raising awareness, your business can help people born with heart conditions live long, full and happy lives.

FIND OUT WHAT YOUR COMPANY CAN DO TO HELP.

Become a Friend

Do you think it’s unfair that CHD patients have to pay for prescriptions?

Do you think that there should be a much greater emphasis on congenital heart research and better awareness of CHD?

Do you wish that your GP, employer and the government understood the condition and challenges better?

If you answered yes to any of these questions, join the thousands already raising awareness of congenital heart defects and fighting for patients’ rights.

Become a friend for just £2 per month

As a Friend you will be the first to hear about exclusive events, research projects and breakthroughs.

Become a Friend

Other ways to help.

FUNDRAISE
DONATE TO A FUNDRAISER
donate
VOLUNTEER
SHOP
LEAVE A LEGACY
ATTEND AN EVENT
PLAY OUR LOTTERY

With your help, we’ve helped fund new and improved treatments for congenital heart disease. we opened the UK’s first dedicated Congenital Heart Research Centre. we’ve organised receptions at the House of Lords and House of Commons, a film première, concerts, parachute jumps, marathon runs, annual sponsored walks and masquerade balls. we ensure that adult CHD patients enjoy access to every opportunity, are free from discrimination, and are fully supported throughout their lives. we’ve staged annual conferences, regional patient information days and workshops throughout the UK. we’ve published a range of leaflets for CHD patients on a wide-range of topics. we’ve launched a Freephone patient helpline to provide practical advice, a listening ear, and emotional reassurance at times of stress. we’ve created online networks where congenital heart patients can connect with each other. we successfully applied for a Comic Relief grant to help develop mental health support services. we’ve contributed to adult congenital heart disease nurse training days and taken part in various study days and conferences for medical and health professionals. we’ve established a benevolent fund for members who are in financial hardship. we’ve organised residential weekends and outward bound holidays for teenagers and adults, providing congenital heart patients with the opportunity to meet and gain support from each other.

Just think what else we could do if you donate, fundraise or volunteer for us.

FIND OUT HOW WE’RE HEALING BROKEN HEARTS  

Keep your heart healthy

Access a wealth of help & advice to help people born with heart conditions live long, full and happy lives.

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Heart to Heart

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