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Sarah’s Story

Living with pulmonary atresia with intact ventricular septum OHS at two days old (1980) and three years old (1983) So here I go – finally putting pen to paper after all these years. I have recently been inspired by so many people who I…
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Antibiotic Prophylaxis Against Infective Endocarditis

Find the attached leaflet containing information regarding Antibiotic Prophylaxis Against Infective Endocarditis, which has been supplied by The Scottish Dental Clinical Effectiveness Programme (SDCEP).  The BCCA (British Congenital Cardiac…
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Know Your Heart Beat

Know Your Heart Beat Heart Rhythms An abnormal heart rhythm is referred to as an arrhythmia. More than 700,000 people in England alone are affected by an arrhythmia (Department of Health, 2005). An abnormal heart rhythm can cause some people…

Pulmonary Hypertension

Pulmonary Hypertension The Somerville Foundation (formerly GUCH PA) has joined forces with Pulmonary Hypertension Association UK (PHA UK) and Down's Heart Group (DHG) to call for the needs of people co-diagnosed with a congenital heart condition…
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Ebstein's and me

Ebstein's and me by Margaret Smith I was born in 1952 and diagnosed with Ebstein's Anomaly at birth. The prognosis was that I would not survive with this condition. I spent my first few years in and out of Sully Hospital in South Wales.…

Ebstein's Anomaly

Ebstein's Anomaly Fiona Kennedy, GUCH Nurse Specialist at London's Heart Hospital explains the condition Ebstein's Anomaly, its associated valve problems and the pioneering new surgery describes Margaret Smith in her accompanying article, "Ebstein's…
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Living with a pacemaker

In GUCH News (issue 72), patient and member Kulsoom Akbar shared her story with us. Kulsoom, now aged 25, had her first pacemaker fitted at just 17 months. Growing up with the device, Kulsoom has encountered many issues, but has also embraced…

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