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Survey: Congenital Heart Disease Priority Setting Partnership

Have YOUR say on the future of Congenital Heart Disease research! A national study has been launched to identify and prioritise the areas of future research in congenital heart disease that are most important to patients, their families,…
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Antibiotic Prophylaxis Against Infective Endocarditis

Find the attached leaflet containing information regarding Antibiotic Prophylaxis Against Infective Endocarditis, which has been supplied by The Scottish Dental Clinical Effectiveness Programme (SDCEP).  The BCCA (British Congenital Cardiac…

Patient Representatives wanted - Congenital Heart Disease Network

The North West, North Wales and the Isle of Man Congenital Heart Disease Network is looking for passionate and motivated patient representatives.  See the below for further details.  For additional information and details on how to apply…
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Making the most of your Doctor's Appointments

Making the most of your Doctor's Appointments I imagine that most of us have had Doctor’s Appointments that have gone well, where we have felt satisfied but also other times when this really hasn’t been the case. Many people find going…
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Deterioration in Health

Deterioration in Health This post offers some thoughts, resources and other links that look at what happens when changes occur in our health. Both emotional impacts and physical aspects are discussed. Change and loss are a part of life. Hearing…
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Travelling as a GUCH Patient

Travelling as a GUCH Patient GUCH patient and The Somerville Foundation volunteer Sophie has travelled extensively and is passionate about seeing the world. She has developed a positive, practical approach to planning holidays and here, with…
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Know Your Heart Beat

Know Your Heart Beat Heart Rhythms An abnormal heart rhythm is referred to as an arrhythmia. More than 700,000 people in England alone are affected by an arrhythmia (Department of Health, 2005). An abnormal heart rhythm can cause some people…