The Somerville Foundation

Legitimate interests Statement

The Somerville Foundation has been working hard to comply with the new General Data Protection Regulations to ensure that you have full access to our services and that all your data remains secure.

Under the new data protection law (GDPR) starting on 25 May 2018 we have a number of lawful reasons that we can use (or ‘process’) your personal information. One of the lawful reasons is called ‘legitimate interests’. Broadly speaking Legitimate Interests means that we can process your personal information if:

  • We have a genuine and legitimate reason and we are not harming any of your rights and interests

This means that when you provide your personal details to us we use your information for our legitimate business interests as a charity to carry out our mission.

To ensure that ACHD patients enjoy access to every opportunity, are free from discrimination and are fully supported throughout their life.

Before doing this, though, we will also carefully consider and balance any potential impact on you and your rights. Some typical examples of when we might use the approach are sending out GUCH News, letting you know about workshops, conferences and events, fundraising, direct marketing, maintaining the security of our system, improving our services, identifying trends and determining the effectiveness of our campaigns.

Our vision

A world where everyone born with a heart condition receives excellent medical care, where ACHD patients lead healthy happy lives and reach their full potential.


To ensure that ACHD patients enjoy access to every opportunity, are free from discrimination and are fully supported throughout their life.

To achieve this, the organisation has the following aims and objectives:

Aims and Objectives

  • To provide all ACHD patients with accurate, timely information and advice, to allow them to grasp opportunities, take informed decisions and make lifestyle choices.
  • To combat isolation and poverty.
  • To fight discrimination through campaigns, education and promoting patients’ rights.
  • To enable patients to share and learn from their experiences, and support each other.

Our interests

The following are some examples of when and why we would use this approach in our work supporting congenital heart patients.

  • Services, ensuring that you receive your copy of GUCH News.
  • Letting you know about events, conferences and workshops.
  • Letting you know about changes at specialist centres, changes in NICE guidance.
  • Informing you of new research discoveries.
  • Direct Marketing: We will use email and postal or digital marketing campaigns as well as fundraising asks, which further the aims and objectives of the Somerville Foundation, helping us to help more congenital heart patients.
  • Accepting donations and payments. In order for us to process an order, payment has to be taken and contact information collected, such as name, address and telephone number, provided.

We will also hold information about you so that we can respect your preferences for being contacted by us.

Your interests

When we process your personal information for our legitimate interests, we will consider and balance any potential impact on you and your rights under data protection and any other relevant law. Our legitimate business interests do not automatically override your interests – we will not use your personal data for activities where our interests are overridden by the impact on you (unless we have your consent or are otherwise required or permitted to by law).

If you want to know more about our data protection, please email

If you want to be removed from our mailing lists email or telephone 01473 252007

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PATIENT HELPLINE: 0300 015 1998

© Copyright 2020 - The Somerville Foundation 2020. The Somerville Foundation is a registered charity in England and Wales No. 1138088 and a registered charity in Scotland No. SC049673. The Somerville Foundation is a Company Limited by Guarantee registered in England and Wales No. 07285409. Registered office at 7 Friars Courtyard, 30-32, Princes Street, Ipswich, Suffolk IP1 1RJ