FREE to join!
A wide range of benefits:
Advocacy and Peer Support
Private social media groups specifically for the CHD community – a great way to meet others with CHD and a place for confidential discussion and support and meeting others in similar situations who “just get it”. Proven to be one of the best ways of reducing isolation, improving mental health and helping to establish coping mechanisms.
Access to Wellbeing Counsellor
Whether living with a CHD for a long time or just being diagnosed, we understand day to day living with CHD can be very distressing. Our Mental Health and Wellbeing Counsellor can offer some support.
Our Counsellor was born with a heart condition too and so understands some of the difficulties and anxieties around living with a heart condition.
Coaguchek Machine Facilitation
Once your healthcare team have agreed you are a suitable candidate for self-testing and you are able to obtain prescriptions for the strips, we are able to supply you with a Coaguchek machine. These can
either be purchased outright at a specially discounted rate or you can pay in instalments (initial deposit, followed by 10 monthly instalments of around £20 per month or, if eligible, you can apply for a grant for
full-funding of a machine. To find out more, email: firstname.lastname@example.org
We publish our newsletter quarterly. It is packed full of articles and information about CHD, some written by those living with a heart condition who have had the courage to share their stories. The online version is emailed to our members free of charge each quarter. If you would like to share your experiences, we’d love to hear from you!
Employment Law Specialist
Our lawyer can provide free initial advice and is available to support our CHD patients with concerns regarding work Get in touch with the office: email@example.com and we’ll put you in touch.
Life and Travel Insurance Brokers
One of our nurse specialists worked with this travel insurance company to better understand the needs of a CHD patient and the impact a CHD can have when travelling. To get a quote from a company that understands more about CHD and not just about NOT covering you when on holiday get a quote via this link.
Though we are unable to provide ongoing financial support we do have a Support Fund that can help CHD patients who are going through a particularly difficult time. These are one-off grants for those in financial difficulty that meet the eligibility criteria. We can provide funds for items/expenses that can make a real difference. Email: firstname.lastname@example.org for an application form. You will be asked to provide evidence of ACHD and being in financial difficulty.
Information and Guidance
Dedicated resources on our website and social media platforms. Our membership area has lots of help and guidance for living with CHD, including information and leaflets on specific conditions, blogs and a resource section with lots of downloadable aticles such as ‘Me, My heart and anxiety’, ‘Coping and living well’, ‘preparing for and coping with surgery’ and ‘Dealing with deterioration in health’.
Invitations to webinars and online events as well as our ‘physical’ ones:
Our private social media groups offer Zoom sessions too, there have been crafting, ‘coffee and chat’, quizzes and wellbeing zoom sessions too. We are starting to run webinars to inform patients and allay their concerns during this difficult period. We are running webinars on lots of different subjects and topics that you have told us you want to know more about.
Take part in our challenges; our February Footsteps is an annual patient group challenge to encourage CHD patients to get out in the fresh air and walk, which is also good for mental health too whilst raising funds to support our work.
Our annual patient conference (when gatherings of around 100 people are allowed again), area/disease specific seminars, meet ups and social gatherings. These are a great way of finding out more about what is happening in the world of congenital cardiology, hear other patients stories, discuss with your peers the issues faced by fellow CHDers. There are ACHD specialist talks, Somerville Foundation up-dates, taster sessions to try and plenty of like-minded ACHD compatriots to meet and chat with. Sadly our annual patient conference costs in excess of £12,000 with many who book not turning up, so we need to ask for a small contribution towards the costs of these in future.
We are often asked by healthcare Professionals in the field of congenital Cardiology to signpost people to their research. They are seeking for willing participants to shape the future of CHD care. You can make a difference by taking part in their research; or our own; to improve services for CHD patients now and in the future.
all the benefits of being a ‘Friend’ plus:
Subsidised MedicAlert Membership
A £10 subsidised discount off annual MedicAlert Membership. MedicAlert is the only UK charity providing life-saving medical ID services. During an emergency every second counts. Your MedicAlert ID, worn on your pulse points, is engraved with your most important information to ensure appropriate initial care decisions are made by those caring for you. Your full medical record obtained quickly via MedicAlert’s 24/7 emergency line.
Free Place at our Annual Patient Event
Our annual patient conference (when gatherings of up to 100 people are allowed again) are a great way of finding out more about what is happening in the world of congenital cardiology, hear other patients’ stories, discuss with your peers the issues faced by follow CHDers. There are ACHD specialist talks, Somerville Foundation up-dates, lots of interesting taster sessions to try and plenty of like-minded ACHD compatriots and families to meet and chat with. This event costs around £12,000 and you are offered a free place as part of your annual membership.
Printed copy Heart Month Newsletter
We publish our quarterly newsletter online but during ‘Heart’ month, in February we will send you a specially professionally printed version by post. Packed full of articles and information about CHD, some written by those found the courage to share their stories.
Lapel pin Badge
A choice of our lovely blue and red pin badge:
or our ‘Wear Your Heart On Your Sleeve’ bracelet:
All presented in a lovely folder to your door.
Please do let us know if you would rather not receive this, we are happy to help the environment and save costs at the same time!
all the benefits of the other 2 ‘tiers’ plus:
Meet with some of the country’s leading cardiologists & VIPs at exclusive events and join in with topical discussions. Once restrictions are lifted we are hoping to arrange ‘dinner with the docs’; an evening of topical conversation in the world of congenital cardiology.