NIGHTRIDER

GLASGOW Nightrider 2019

NIGHTRIDER™ GLASGOW 2019 Date: 22/23 June 2019 Distance: 50km or 100km REGISTER NOW  After the success of the inaugural Glasgow Nightrider in May 2018, the iconic charity bike ride is returning to Scotland in 2019. You can be a part…
nightrider

LONDON Nightrider 2019

NIGHTRIDER™ LONDON 2019 Date: 8 / 9 June 2019 Distance: 50km or 100km Nightrider is celebrating its 10th anniversary in London 2019, and you can be a part of this special cycle challenge! Taking place throughout the night, Nightrider…
Surgeon looking at digital heart on a screen

Data leads the way

The Newcastle Freeman Hospital department of Paediatric and Adult Congenital cardiology serves a UK region of just under 3 million people (5% of the total UK population). All congenital abnormalities are recorded on the region’s NORCAS (Northern…

How to Access Counselling and Psychological Services

How to find counselling & support services. Reasons for thinking about this might be because you would like space to talk over concerns or feelings related to having congenital heart disease or because of other life issues. This is a…

My life on Warfarin

I have been taking the drug warfarin since I was just six months old. I'm now 23, and when I tell people I take warfarin, they are sometimes confused and shocked. Why would a seemingly healthy 23 year old woman be on a drug commonly associated…
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Getting older with CHD - Part 2

"acquiring" other conditions This is the second of two articles Written by Dr Leisa Freeman, Consultant GUCH Cardiologist, and Toni Hardiman, Specialist GUCH Nurse GUCH Clinic Norfolk & Norwich University NHS Hospital.  These articles…
Surgeon looking at digital heart on a screen

Clinical Research for Congenital Cardiology

From a patient perspective, the concept of being involved in clinical research may be daunting, disconcerting, and unsettling but, equally, it can be rewarding to have the opportunity to increase the knowledge of how best to manage their condition.…
MRI Scan
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You need an MRI scan of your heart

Written collaboratively by Jonathan Upton, adult congenital heart patient and Helena Francis, Adult Congenital Heart Clinical Nurse Specialist at University Hospital Southampton NHS Foundation Trust Perhaps these words are familiar to you.…
Echocardiology Screen

What is an Echo

Written by Jo Quirk, Cardiac Nurse Specialist at Leeds General Infirmary A transthoracic echocardiogram (commonly known as an echo) is a scan of the heart using a machine, a probe and gel. The probe is placed on the chest wall and ultrasound…

Managing Your Heart Condition

Since the first diagnosis of congenital heart disease, medical care and treatment have advanced, and many patients are living longer and healthier lives into adulthood and old age. All adults living with a heart defect should talk with a…