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Big Six Research

DONATE TO THE BIG SIX CAMPAIGN Thank you for joining our fight against congenital heart disease. The Somerville Foundation (TSF) has always worked hard to improve the lives of people who were born with a heart condition. We have a vision…

Campaigning in Scotland

Campaigning in Scotland We are working with service providers and relevant stakeholders to improve health care provision. On our behalf, Dr Liza Morton sits on NHS Scotland's Scottish Congenital Cardiac Advisory Board & their working group…

Lottery Results - 10th November 2018

Lottery Results from www.unitylottery.co.uk
Pharmacist holding box of tablets
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Am I entitled to free NHS prescriptions?

The prescription charge in England is currently £7.65 (April 2012). For residents of Scotland, Wales and Northern Ireland there is no charge for prescriptions. Make sure you don't pay for your prescriptions, if you don't have to. You can…
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Travelling as a GUCH Patient

GUCH patient and The Somerville Foundation volunteer Sophie has travelled extensively and is passionate about seeing the world. She has developed a positive, practical approach to planning holidays and here, with the help of some of our members…
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Lets chill out

Taking time to relax is an important part of dealing with the stresses that life can throw at us. Learning how to relax is particularly helpful for those times when we get anxious or panicky. Practicing relaxation techniques as preparation for…
travel insurance
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Travel insurance

Finding Travel insurance is a must if you are considering travelling abroad possibly the most important thing you need after your passport. The travel insurance market can be a minefield, especially for those with an existing medical condition,…
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Travel information

This leaflet gives information on travelling for adults who were born with a heart condition (congenital heart condition). Having a congenital heart condition doesn’t mean you can’t travel but it may require a bit of advance planning. It…
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Lifestyle issues

This leaflet is designed to provide you with advice on some lifestyle choices and issues that may be related to your heart condition. The aim of the leaflet is to provide you with information so you can make the decisions for yourself. Download…

ACHD & pregnancy

It is a tribute to modern day infant heart surgery that those born with congenital heart problems can now consider having children themselves. Congenital heart defects (CHD) also known as ACHD (Adult congenital heart defects) or GUCH (Grown…
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Coping With Medical Procedures

Written by Dr Sara O'Curry, Chartered Clinical Psychologist Who wouldn't get anxious before a medical procedure? Biologically speaking, a procedure is a threat (someone moving towards you with a sharp object) and we are designed to respond…
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Know Your Heart Beat

Know Your Heart Beat Heart Rhythms An abnormal heart rhythm is referred to as an arrhythmia. More than 700,000 people in England alone are affected by an arrhythmia (Department of Health, 2005). An abnormal heart rhythm can cause some people…
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Patients' Experiences of Waking up in Intensive Care

Patients' Experiences of Waking up in Intensive Care Intensive Care can be perceived as somewhere you will only find yourself if you are very sick. I invited GUCH patients and their relatives to share their memories of the intensive care units…
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Emotional and Mental Health Resources

Emotional and Mental Health Resources Here are a selection of articles and resources that address some of the emotional and mental health challenges that can arise for people designed to help with living with congenital heart disease. For additional…
Trainers with heart shape made from laces
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Exercise Research

We are all aware that exercise is good for us and in the general population, exercise is recommended for everyone to help maintain a healthy weight, keep a normal blood pressure and maintain physical fitness.  We have seen the strength of the…

Pulmonary Hypertension

Pulmonary Hypertension The Somerville Foundation (formerly GUCH PA) has joined forces with Pulmonary Hypertension Association UK (PHA UK) and Down's Heart Group (DHG) to call for the needs of people co-diagnosed with a congenital heart condition…
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Ebstein's and me

Ebstein's and me by Margaret Smith I was born in 1952 and diagnosed with Ebstein's Anomaly at birth. The prognosis was that I would not survive with this condition. I spent my first few years in and out of Sully Hospital in South Wales.…

Ebstein's Anomaly

Ebstein's Anomaly Fiona Kennedy, GUCH Nurse Specialist at London's Heart Hospital explains the condition Ebstein's Anomaly, its associated valve problems and the pioneering new surgery describes Margaret Smith in her accompanying article, "Ebstein's…

Ten Good Reasons To Exercise

Ten Good Reasons To Exercise By Beth Greenaway Recent media coverage has shown that only a small percentage of the population in the UK gets the recommended amount of exercise each week. We are rapidly turning into a nation of overweight,…

Male Health Issues

Male Health Issues By Antony Horner A talk was delivered by Dr Lucy Roche, a registrar at the Royal Freeman Hospital in Newcastle, at our Annual Conference in September 2006. As this is a subject not widely covered, Antony Horner, our website…
Young couple checking heart rate

Monitoring Excercise Intensity

Monitoring Excercise Intensity By Beth Greenaway Following on from the last article on beginning an exercise programme, I am going to introduce you to methods of monitoring your exercise intensity so that you will be doing your heart the…
Couple sat on grass stretching

How to begin an exercise programme

How to Begin an Exercise Programme By Beth Greenaway In the New Year, and with the excesses of Christmas just a memory, many turn their attention to weight loss and fitness goals. New exercisers fill gyms for the first weeks of January,…
Doctor checking heart rate of female patient
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Getting older with CHD. Part One

This is the first of two articles Written by Dr Leisa Freeman, Consultant GUCH Cardiologist, and Toni Hardiman, Specialist GUCH Nurse GUCH Clinic Norfolk & Norwich University NHS Hospital.  These articles originally appeared in issue 68…
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Liverpool Nightrider 2019

NIGHTRIDER™ LIVERPOOL 2019 Date: 13 / 14 July 2019 Distance: 50km or 100km. REGISTER NOW Nightrider Liverpool is back for the 4th consecutive year in Liverpool and you can be a part of this special cycle challenge! Taking…
NIGHTRIDER

Bristol Nightrider 2019

NIGHTRIDER™ BRISTOL 2019 Date: 6 / 7 July 2019 Distance: 50km or 100km REGISTER NOW REDUCED FUNDRAISING TARGET Nightrider is returning to Bristol and you can be a part of this special cycle challenge! Taking place throughout the night,…

A long tradition of high quality care and research

Introduction The Royal Brompton Hospital (RBH) has a long tradition of innovation and leadership in congenital heart disease. While children’s lives have been transformed by early intervention, many have ongoing needs into adulthood, including…
World Cup concept - football in front of world flags

World Cup rehabilitation

My twin sister and I were born on 4th September 1981, I was born with Tetralogy of Fallot (TOF) and had open heart surgery at the age of three to repair a hole in my heart.  I am afraid I don't remember too much about this particular operation…
Your Heart and You book

Your Heart and You - Book review

Your Heart and You - by Elizabeth Wilde McCormick, Leisa Freeman Published by Piatkus Books ISBN: 0749922036 Priced at £6.99 Buy Your Heart And You: A holistic guide to a healthier heart  Looking after your heart is important whether…
King of Hearts book

King of Hearts - Book review

King of Hearts : The True Story of the Maverick who Pioneered Open Heart Surgery - by G Wayne Miller Published by Random House ISBN: 0812930037 Priced at £10.42 Buy King of Hearts  "1 in every 100 children are born with a Congenital…
big hearted man

Big Hearted Man - Book review

Big Hearted Man - Kate Boydell Published by Troubador ISBN: 1899293345 Priced at £7.69 Buy Big-hearted Man  How many of us have thought that we should write a book about what has happened to us as congenital heart patients? And how…