Treating your heart condition.

At least one out of every 125 babies born each year has a heart condition. About half of these babies have a minor ailment and will not need any treatment. The rest will require medical treatment or surgery.

However, not all conditions are discovered in early life. And, regardless of when a diagnosis is made, many CHD patients will need treatment and surgery into adulthood.

Furthermore, some people may need more than one heart operation. For example, if an artificial valve or plastic tube is inserted into the heart as a child, this will need replacing as they outgrow it. This can occur several times. Sometimes just ageing and growth can reduce the effectiveness of the first surgery.

If you are an adult living with a heart defect, you should have access to a cardiologist regularly throughout your life. This is necessary to talk about treatments, medicines, and the ongoing and long-term care of your specific condition. And so you can make the best possible choices for your health.

The right, ongoing medical care will help children and adults with a congenital heart defect to live as healthy a life as possible.

Check out our Frequently Asked Questions on living with and managing a heart condition.

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With your help, we’ve helped fund new and improved treatments for congenital heart disease. we opened the UK’s first dedicated Congenital Heart Research Centre. we’ve organised receptions at the House of Lords and House of Commons, a film première, concerts, parachute jumps, marathon runs, annual sponsored walks and masquerade balls. we ensure that adult CHD patients enjoy access to every opportunity, are free from discrimination, and are fully supported throughout their lives. we’ve staged annual conferences, regional patient information days and workshops throughout the UK. we’ve published a range of leaflets for CHD patients on a wide-range of topics. we’ve launched a Freephone patient helpline to provide practical advice, a listening ear, and emotional reassurance at times of stress. we’ve created online networks where congenital heart patients can connect with each other. we successfully applied for a Comic Relief grant to help develop mental health support services. we’ve contributed to adult congenital heart disease nurse training days and taken part in various study days and conferences for medical and health professionals. we’ve established a benevolent fund for members who are in financial hardship. we’ve organised residential weekends and outward bound holidays for teenagers and adults, providing congenital heart patients with the opportunity to meet and gain support from each other.

Just think what else we could do if you donate, fundraise or volunteer for us.


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